The CONNECT project (CONtiNuity of carE and support for autistiC adulTs) aimed to break down barriers and understand the everyday needs and challenges faced by Autistic adults. For those entering adulthood, medical, psychological, social, and community needs are numerous and varied. This growing population frequently reports difficulties in connecting with care and support during this transitional period, which can undermine the progress made during their childhood years. Through this unique project, decision-makers have access to a portfolio of evidence-based tools, created in collaboration with Autistic adults, their families and other knowledge users to improve the continuity of care and support for the Autistic community.
Objectives
- Assess the needs of Autistic adults via a survey; and,
- Share what we learned and best practices with health and social service providers, policy-makers and the Autistic community.
What we learned
- Impact story (MSSU): New funding a ‘game changer’ for autism research in the Maritimes (Mar 28, 2025)
- Video: The CONNECT Research Video (external link)
- Video: The CONNECT Needs Assessment (external link)
- Peer-reviewed publication: The Associations Between Clinical, Social, Financial Factors and Unmet Needs of Autistic Adults: Results from an Observational Study (external link)
- Research article: “We are the stakeholders with the most at stake” (external link)
- Journal article: Strategies for Research, Practice, and Policy for Autism in Later Life (external link)
- News (MSSU): CONNECT conference presentations in 2019 (Nov. 6, 2019)
- News (MSSU): New video shares the experience of Autistic adults (Aug. 20, 2019)
- News (MSSU): CONNECT team gets creative to share findings in a video (Feb. 12, 2019)
- News (MSSU): The Autistic Adults Summit: a landmark event in the Autistic community narrative (Dec. 18, 2017)
- News (MSSU): Autism research led by autistics and their caregivers in the Maritimes (Sept. 17, 2017)
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