The Myeloma Priority Setting Partnership (PSP) entered its final phase with a virtual workshop that took place on April 28-29, 2021.
At the workshop, a diverse group of 23 people living with myeloma, caregivers, and healthcare professionals came together to determine the Top 10 priority questions for future myeloma research from a longer list of questions identified through two rounds of surveys. The selection process was completely transparent and interactive, with participants discussing, debating, and ranking what they felt were the highest research priorities.
It’s important to note that none of the research questions will be lost; those that did not make the Top 10 will still be made available to be considered for future programs and educational material.
The research team is now focused on developing a marketing and communications plan to share the Top 10 priority research questions, which will include submission to a peer-reviewed journal, promotion to industry-related funders, and publications for those affected most by Multiple Myeloma – patients, caregivers, and healthcare providers!
We want to thank everyone who has been working so hard to bring this important Top 10 priority research question list in Multiple Myeloma to fruition.
Stay tuned for more information.
About Myeloma PSP
The Myeloma Priority Setting Partnership (PSP) is a research initiative led by a Pan-Canadian Steering Group of people living with myeloma, their caregivers, and healthcare professionals. The project is led by the MSSU team in Saint John with support from staff at the MSSU offices in Moncton and Halifax. The program is overseen by the James Lind Alliance, a UK-based, non-profit organization specializing in PSPs, and sponsored by Myeloma Canada.