Are you a patient or family member with experience in an ICU?
We need your help to improve the way ICU research is conducted and ensure it reflects what matters most to patients and families. This project is patient-oriented: patients and families are actively engaged in shaping the research process. Your perspectives will help us decide which sociodemographic variables—such as race, gender, income, and disability—should be consistently collected and reported in ICU clinical trials. These variables are known to affect critical care outcomes, yet they are often inconsistently captured. As a result, we lack the evidence needed to ensure equitable care for all patients.
Why your participation matters:
Your input will help answer research questions that are meaningful to patients and families, with the goal of improving health outcomes and ensuring the health system better serves diverse communities. By identifying which sociodemographic data are most important to collect, you’ll be helping to set a standard that promotes more inclusive, equitable ICU research and care.
What participation involves:
- Completing a short demographic questionnaire
- Participating in up to three brief Delphi survey rounds (approx. 15 minutes each)
- Rating the importance of different sociodemographic variables for inclusion in ICU trials
- Suggesting any variables we may have missed