A research team from Memorial University is looking for Patient/Public Partners to help inform a grant application for a research project exploring access to care for people with diabetes in the Atlantic provinces. Diabetes is a complex disease requiring complex management. To manage effectively and prevent physiological and psychological complications, people with diabetes (PWD) need access to numerous supports, including (but not limited to) healthcare providers, medications, nutritious foods, and other diabetes supplies (i.e., needles, syringes, insulin pumps, glucose strips, meters, etc.). Issues of access can be a significant challenge for individuals to manage their diabetes. In Atlantic Canada, issues of access are compounded by the vast geography.
The team will include adult PWD (patient partners), health care providers, researchers, and policymakers in collaboration with NL-Support and Maritime SPOR Support Unit (MSSU). Patient/Public Partners from Newfoundland, New Brunswick, Nova Scotia, and Prince Edward Island will help the team to guide recruitment (e.g., when, where, how), data collection (interview questions), analysis (meaningful data), and knowledge translation (meaningfully applied translation of findings).
Eligibility
- Patient partners should either live with diabetes (either Type 1 or Type 2) or be a caregiver for or family member of someone living with diabetes and have experience accessing diabetes care and support.
- Live in Nova Scotia, New Brunswick or Prince Edward Island
- As a partner in the research, a personal resume is required.
- Able to attend virtual meetings
Time commitment
The engagement in proposal development phase includes participation in a two-hour online meeting in September or early October 2024 to review the idea for the grant (exploring access to diabetes care and support). There is also a possibility of being involved in the research project should it receive funding.
After the start of the project (upon acceptance of the proposal), five meetings are anticipated – one to discuss/review the idea for the project, one to discuss/review recruitment of participants, one to discuss data collection, one to discuss findings, and one to discuss knowledge translation products/activities. Additionally, patient partners will be included in relevant knowledge translation activities such as possible conferences.
Appreciation
Compensation will be offered once the project is funded.