This study involved two phases as part of a larger project aimed at improving healthcare transitions. The first phase involved interviews and focus groups with patients, caregivers, and clinicians to explore perspectives on barriers and enablers to transition, as well as preparation for transition.
Building on those insights, the second phase uses health administrative data to examine system-level patterns. Data from multiple datasets have been merged to create a comprehensive view, which will be analyzed to explore key research questions related to health system use and outcomes.
Objectives
- To describe the pattern of healthcare utilization for youth with chronic disease (Irritable Bowel Disease, Diabetes, Cystic Fibrosis, Juvenil Idiopathic Arthritis) before and after transfer to adult care.
- To identify predictors (e.g., age of diagnosis, area of residence, continuity of primary care, number of pediatric visits pre-transfer, length of time between visit to pediatric to adult provider) of high- and low-quality care transfer based on available data.